Support · Care · Awareness

Together for Myositis Patients.

We connect patients, caregivers, specialists, and researchers so every person living with Myositis gets timely information, compassionate support, and better care outcomes.

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Myositis India — IRACON 2025 medical conference group photo

Myositis India medical research gathering

Welcome • Myositis India

Empowering Lives Through Awareness & Support

A non-profit organisation dedicated to improving the lives of people affected by myositis in India through awareness, patient support, and medical research.

Welcome to Myositis India, a unit of Madalasa Foundation, a non-profit organization dedicated to improving the lives of people affected by myositis in India. If you're looking to learn more about Myositis India, our mission is to raise awareness, provide support, and promote research for myositis—a rare and complex autoimmune disease that causes inflammation and weakness in the muscles. We provide a platform for patients, caregivers, and healthcare professionals to connect, share their experiences, and learn from each other. As a dedicated nonprofit for myositis, our website offers a wealth of resources, including educational materials, support groups, and information on clinical trials and treatment options. Learn More!

Patient Helpline

Get immediate support and guidance from our dedicated helpline team.

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Expert Network

Connect with specialists who understand Myositis and its challenges.

Find experts

Clinical Research

Stay informed about the latest research and clinical trials.

Explore research

BRAND AMBASSADOR • MYOSITIS INDIA

Samantha Ruth – Raising Her Voice for Myositis

A leading Indian Actress turning her own diagnosis into hope, awareness, and support for people living with myositis.

Samantha Ruth

Indian Actress

Myositis is a rare autoimmune disease that can cause severe muscle weakness and affect everyday life. When Samantha was diagnosed, she chose not to stay silent—she chose to share.

By talking openly about her diagnosis, treatment journey, and emotional ups and downs, she has helped thousands of people feel seen, heard, and less alone.

As Myositis India's brand ambassador, Samantha collaborates with doctors, patient groups, and caregivers to spotlight early diagnosis, access to care, and mental health for those living with myositis.

Know her full story Why myositis awareness matters

Together, we aim to change how myositis is understood in India — from a rare, “invisible” condition to a recognised, supported journey.

Research & Innovation

Ongoing Clinical Trials

Explore active locations across India where dedicated professionals are conducting world-class Myositis research and trials.

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Frequently Asked Questions

Find quick answers to some of the most common questions from our community.

Myositis is a rare autoimmune disease that causes chronic inflammation of the muscles. It leads to progressive muscle weakness, fatigue, and can sometimes affect other organs like the skin or lungs. Early diagnosis and proper medical care are crucial for managing symptoms effectively.

Myositis India serves as a comprehensive support system. We connect patients with specialised doctors, provide access to support groups, share the latest research updates, and advocate for better healthcare policies. We strive to create a community where no one has to face myositis alone.

Yes. While we facilitate large community groups, we also understand the need for personal guidance. Our dedicated helpline and volunteer ambassadors are available to offer one-on-one support, answer specific concerns, and help navigate treatment options with experts.

No, Myositis India is strictly a non-profit patient advocacy organisation. We do not provide direct medical treatment or operate as a medical facility. Instead, we act as a bridge connecting patients to verified medical professionals, specialists, and hospitals that understand myositis.

We actively welcome collaborations with rheumatologists, neurologists, researchers, and healthcare institutions. Doctors can join our medical directory or expert network. Organisations can partner with us for awareness campaigns, fundraising, or clinical trials. Please reach out via our Contact page to get started.